Coming Home

Hi we get to come home today. Jon is still receiving radiation to his lumbar spine and will continue to do so as an out-patient for the next couple of days. They have also put him on a strong steroid, so hopefully no more damage will occur to his spinal cord. The IV pain medications have really helped to get this pain under control. We are so happy to go home. Neither of us has been able to get any sleep here because the nurses never leave us alone. I guess I can't blame them for doing their job.
Our Oncologist, Dr. Grossmann is unsure right now if this whole ordeal is an indicator as to the non-effectiveness of the chemotherapy drug, Temodar we were taking last week or not. There are a couple different areas on Jon's body that are superficial nodular cancer tumors that we can measure and feel, so we can determine their size. The plan is for me to check the measurements of these areas in one week and if there is any differences in size then I am to let Dr. Grossmann know. If they are growing then we will try a different treatment asap he said. I hope that is true however and there will be no more of a waiting period because we are really getting down to the wire.
Thanks to all of those who fasted with us and are praying for us on Jon's behalf. We are feeling good today. It's always good for me to have a plan and then a back up plan for my mind to be able to get some peace. We are staying positive and are still praying for a miracle and understanding of this trial. Thanks for all of the support everyone has given to us. Its wonderful to know how much we are cared for by so many.